Vaccine Induced Thrombocytopenia and Thrombosis (VITT) Support

In March 2021 the first reports of an extremely rare adverse event of concurrent thrombosis (blood clots) and thrombocytopenia (low platelet count) following the Oxford Astra-Zeneca COVID vaccination were reported. This new, very rare syndrome was named Vaccine-induced Immune Thrombocytopenia and Thrombosis (VITT).

VITT causes blood clots to form in the blood vessels in different parts of the body including the brain, liver, gut, heart, legs, lungs and kidneys and is considered a medical emergency. If suspected, VITT needs urgent medical attention.

In March 2021 the Expert Haematology Panel (EHP) was set up. This team of experts review suspected cases of VITT and have developed Living Guidance for clinicians in the prevention and management of VITT and a Patient Information fact sheet on VITT, endorsed by Thrombosis UK.

As a result, survivors can experience significant psychological impact and may need psychological support.

From February 2022 Thrombosis UK has made available two new services that may be of benefit to VITT survivors:

  • A closed Facebook peer to peer support group specifically for VITT patients
  • An internet-based psychological support service led by a clinical psychologist to which patients may be referred by clinicians or self-refer.

These provisions add to our existing support including patient- and professional-focused information on VITT and a range of psychological coping strategies presently available on the Thrombosis UK website.

Thrombosis UK - Facebook peer to peer support group

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Facebook

Thrombosis UK currently has run a highly successful Facebook peer to peer support group for patients with VTE for several years. A second, fully moderated, closed support group, restricted to patients with a confirmed diagnosis of VITT is now available. To learn more and join this closed group designed to provide support, please email clare@thrombosisuk.org

Thrombosis UK - Psychological support group

Psychological support

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Psychological support

Thrombosis UK has established a psychology therapy and consultancy service specifically for VITT patients.

This is led by a clinical psychologist (Prof Paul Bennett) who has substantial experience in the treatment of individuals experiencing adverse psychological reactions to significant health challenges. Although operating virtually (via zoom), this will provide live therapy sessions, email support, and consultations as appropriate.

All patients referred to the service will have an initial ‘live’ consultation and follow-up support as appropriate.

If you have been diagnosed with Vaccine-Induced Immune Thrombocytopenia and Thrombosis (VITT) and would like to learn more about the support available from Thrombosis UK for VITT survivors, please complete this online form and we will make contact with you via your email address.