BECOME INVOLVED
See how you can get involved in our community.
Explore Ways to Become Involved
National Thrombosis Week (NTW)
5th – 10th May 2025
Hosted in the first full week of May, this is Thrombosis UK’s annual awareness week. With educational events, displays, and media activities to shine a light on thrombosis in the UK.
Everyone is invited to join in – share your story, contact your local radio station or newspaper to add NTW to their calendar, hold an awareness activity, distribute information, or join our NTW’25 educational conference and meetings. Let’s work together to help everyone to #KnowThrombosis and #ThinkThrombosis, preventing harm and saving lives.
Share your Story
Knowing that you are not alone, can make such a difference. Understanding what others have experienced and things that have helped – or challenged, along the way.
If you would like to offer your support by sharing your account you will be helping many, many other.
Simply write your account in an email or on a word document and email this to [email protected] ideally including with one or more photos.
Get involved with research
Thrombosis UK has received a request from a team of researchers at Middlesex University and Uppsala University who are looking to conduct a research study on chronic pain and are looking for potential participants who will receive free psychological therapy and lifetime access to an online therapy platform at no cost.
Study Information:
Living with chronic pain can be overwhelming, impacting both mental and physical well-being. Psychological interventions can help manage these challenges, but their effectiveness varies among individuals. The goal of the work is to understand how different people respond to Internet-based psychological therapy and determine what works best for them.
By participating, individuals will not only gain access to free therapy but also contribute to valuable research that could improve chronic pain management strategies for others.
For further information or to express interest, please email Dr. Kitty Kioskli – [email protected]
Participants Needed!
A team from Cardiff Metropolitan University are seeking participants for a study looking into post thrombotic syndrome (PTS), with the intention that the work will bring greater awareness about this condition.
Topics discussed will include:
- Physical, psychological and social impact of PTS.
- Experience of healthcare.
- Coping mechanisms.
- Opinion of awareness of PTS.
The team are seeking individuals over the age of 18 and with a diagnosis of PTS.
Read full details and register an interest
Join Our Community
Thrombosis UK Closed Facebook page provides friendship, discussion, information and support to all those affected by venous thromboembolism (VTE).
Join the Thrombosis UK Closed Facebook friends group
Volunteer
Volunteering can be a one-off or a regular commitment – what best suits you.
Examples how a volunteer might help:
1. Share their story to help others.
2. Raise a voice for thrombosis.
Each year Thrombosis UK hold awareness campaigns. Press and media coverage is critical to increasing awareness to many 1000s of people.
Would you consider sharing your story and where you are based (region), so that we can include you on our bank of volunteers we could call upon if approached by a journalist seeking to include a newspaper, TV or radio article about thrombosis?
- Present and talk about their experience.
Are you a confident communicator and comfortable presenting to an audience? Local centres seeking to deliver educational sessions for healthcare professional (HCPs) often approach Thrombosis UK and ask if we may know of a person happy to share their experience of a blood clot to help HCPs understand this from a patient perspective and experience. If you would be willing to share and present, please email [email protected].
- Proof-read or review new resources.
- Consider being a patient representative on a research steering committee.
- Get involved with research.
If any of these appeal to you or if you have a skill or idea you would like to offer as a volunteer to Thrombosis UK, please email [email protected]
Current Research Opportunities
A team from Imperial College London are seeking a patient representative to join the ACUTE project which is currently preparing to apply for grant funding. Read the plain language summary.
The team is seeking a patient/public member to be a co-applicant for this project at 2% FTE. Involvement would include reviewing study protocol, patient-facing materials and attendance at study meetings depending on availability.
If you would like to participate or have further questions, please contact Dr Karen Soh at [email protected].
Add your opinion
The ACUTE project team invites interested individuals to participate in a survey to share their thoughts on the study.
World Thrombosis Day (WTD)
A global event hosted annually on 13th October World Thrombosis Day (WTD) focuses attention on thrombosis. It embraces thousands of educational events across the world, and brings together in partnership patients, healthcare professionals, policy makers, research and industry supporters to place a global spotlight on thrombosis as an urgent and growing health problem.
The Date
WTD takes place every year on 13 October, this is the birthday of Rudolf Virchow who was a pioneer in the pathophysiology of thrombosis.