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National Thrombosis Week (NTW) - Let's Talk Clots and start the conversation

NTW – Held annually in May

Hosted in the first full week of May, this is Thrombosis UK’s annual awareness week. With educational events, displays, and media activities to shine a light on thrombosis in the UK.

Everyone is invited to join in – share your story, contact your local radio station or newspaper to add NTW to their calendar, hold an awareness activity, distribute information. 

 

  Throughout NTW we will be raising awareness of blood clots. In 2025 the campaign will focus on: ‘Let’s Talk Clots.’ 

Blood clots can affect anyone, but knowing the risks and symptoms can save lives. Let’s Talk Clots and start the conversation!

Working together we can all make a difference in preventing harm and saving lives. 

#LetsTalkClots #KnowThrombosis #ThinkThrombosis

Could you donate or fundraise for Thrombosis UK? Your support really does make a difference and will be used to continue and extend our work in providing support, information, free medically approved resources, education  and support research into prevention and improved management of blood clots, can continue. Scan the QR code or click HERE to donate.

Share your blood clot story

Knowing that you are not alone, can make such a difference. Understanding what others have experienced and things that have helped – or challenged, along the way.

If you would like to offer your support by sharing your account you will be helping many, many other.

Simply write your account in an email or on a word document and email this to [email protected] ideally including with one or more photos.

Provide your experience working with the National Institute for Health and Care Excellence (NICE)

May 2025:

The National Institute for Health and Care Excellence (NICE) produces guidance on the most effective ways to prevent, diagnose and treat disease and ill health, and provide social care support. They are currently recruiting two new lay members to join the board to bring a perspective of patients, people who use services, and carers to selection and routing of topics.

  • Activity description: The National Institute for Health and Care Excellence (NICE) produces guidance on the most effective ways to prevent, diagnose and treat disease and ill health, and provide social care support. It’s important that NICE prioritises those areas of guidance development that will have greatest impact on the health and care system. To help do this the NICE Prioritisation Board was set up to decide whether to select topics for guidance development. For more information, including videos explaining NICE’s approach to prioritising topics, please visit our prioritising our guidance topics webpage. We have also developed a short video to explain the role of the prioritisation board and the role of the lay member.

  • Skills & experience needed: NICE are looking for two people to join the board to bring a perspective of patients, people who use services, and carers to selection and routing of topics. They won’t have personal knowledge or experience of every topic this committee looks at, but they should have a broad understanding of the issues important to patients and their families or unpaid carers.
  • Time commitment: Meetings take place every two weeks and last for two hours. You will be expected to read the meeting papers in advance, which takes up to two hours.
  • Key dates: The closing date is 15 June 2025. 
    Interviews will take place on Friday 27 June, and the first meeting will take place 21 July, 10-12pm.
  • Location: Meetings will be online via web conferencing software.
  • Payment: You will receive £150 for each meeting.
  • How to apply: Please visit our recruitment page for the full recruitment documents the online application. The closing date is Sunday 15 June 2025. For further details please contact Mark Rasburn, [email protected]k

Get involved with research

#1 Opportunity!

Thrombosis UK has received a request from a team of researchers at Middlesex University and Uppsala University who are looking to conduct a research study on chronic pain and are looking for potential participants who will receive free psychological therapy and lifetime access to an online therapy platform at no cost.

Study Information:
Living with chronic pain can be overwhelming, impacting both mental and physical well-being. Psychological interventions can help manage these challenges, but their effectiveness varies among individuals. The goal of the work is to understand how different people respond to Internet-based psychological therapy and determine what works best for them.

By participating, individuals will not only gain access to free therapy but also contribute to valuable research that could improve chronic pain management strategies for others.

For further information or to express interest, please email Dr. Kitty Kioskli – [email protected] 

#2 Opportunity!

Add your voice to the design of a trial:

Opportunity to be involved in the design of a UK study on the role of tranexamic acid in the treatment of heavy menstrual bleeding in women anti-coagulated for a prior thrombosis.

If you are interested and keen to become involved, please email: [email protected] for more details. 

#3 Opportunity!

Participants needed to complete an online survey looking at the emotional impact of thrombosis and suitable support.

#4 Opportunity!

A team from Imperial College London are seeking a patient representative to join the ACUTE project which is currently preparing to apply for grant funding. Read the plain language summary.

The team is seeking a patient/public member to be a co-applicant for this project at 2% FTE. Involvement would include reviewing study protocol, patient-facing materials and attendance at study meetings depending on availability. 

If you would like to participate or have further questions, please contact Dr Karen Soh at [email protected].

#5 Opportunity!

 

Add your opinion

 

The ACUTE project team invites interested individuals  to participate in a survey to share their thoughts on the study. 

Join Our Community

Thrombosis UK Closed Facebook page provides friendship, discussion, information and support to all those affected by venous thromboembolism (VTE).

Volunteer

Volunteering can be a one-off or a regular commitment – what best suits you.

Examples how a volunteer might help:

1.         Share their story to help others.

2.         Raise a voice for thrombosis.

Each year Thrombosis UK hold awareness campaigns. Press and media coverage is critical to increasing awareness to many 1000s of people.

Would you consider sharing your story and where you are based (region), so that we can include you on our bank of volunteers we could call upon if approached by a journalist seeking to include a newspaper, TV or radio article about thrombosis?

  1. Present and talk about their experience.

Are you a confident communicator and comfortable presenting to an audience? Local centres seeking to deliver educational sessions for healthcare professional (HCPs) often approach Thrombosis UK and ask if we may know of a person happy to share their experience of a blood clot to help HCPs understand this from a patient perspective and experience. If you would be willing to share and present, please email [email protected].

  1. Proof-read or review new resources.
  2. Consider being a patient representative on a research steering committee.
  3. Get involved with research.

If any of these appeal to you or if you have a skill or idea you would like to offer as a volunteer to Thrombosis UK, please email [email protected]

World Thrombosis Day (WTD)

A global event hosted annually on 13th October World Thrombosis Day (WTD) focuses attention on thrombosis. It embraces thousands of educational events across the world, and brings together in partnership patients, healthcare professionals, policy makers, research and industry supporters to place a global spotlight on thrombosis as an urgent and growing health problem.

The Date
WTD takes place every year on 13 October, this is the birthday of Rudolf Virchow who was a pioneer in the pathophysiology of thrombosis.

Contact Us To Get Involved

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How Do You Want To Get Involved

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award deep vein thrombosis (DVT) pathway award for leading to improved timely diagnosis of thrombosis
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for an excellent Quality Improvement programme that advanced practice in thrombosis prevention or management.
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for outstanding patient resource, sharing information. about VTE prevention for patients and carers
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for Enhancing Patient Experience
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for advancing awareness and information sharing of cancer acquired thrombosis (CAT)
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for work in VTE Prevention
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

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