Thrombosis UK has updated its Privacy Policy to reflect changes to data protection law.

Thrombosis UK respects and holds as confidential, any personal data you share with us. Thrombosis UK never shares data with a third party and only receives data about you that you share – we do not, and have never, purchased data from other organisations.

Thrombosis UK (we) have an ‘opt-in’ policy – that is we only store contact details about an individual if the individual has shared them with us. From May 2018, in line with new regulations, we will only store this information with the individual’s express permission.

How do we collect information?

We collect information in the following ways:

When you give it to us DIRECTLY
You may give us your information in order to sign up for one of our events, share your story, make a donation or sponsor a fundraiser, purchase from our shop or make contact with us for any other reason.

When you give it to us INDIRECTLY

Your information may be shared with us by a linked organisation, for example when you make a donation via Just Giving or sign up for ‘Run For Charity’ and nominate Thrombosis UK as your chosen charity, the organisation running these sites will ask if you consent to your information being shared with your nominated charity. If you tick ‘yes’, then they will contact us so that we can support your hard work and thank you.

These independent third parties will only contact and share your details with us when you have indicated that you wish to support Thrombosis UK and have given your consent. We recommend you check the Privacy Policy of an organisation when you provide our information to understand fully how they will process your data.

We recommend you check the Privacy Policy of an organisation when you provide our information to understand fully how they will process your data.

We may also see your details when you contact us via social media:

Depending on your settings or the privacy policies for social media and messaging services like Facebook, WhatsApp or Twitter, you might give us permission to access information from those accounts or services.

Our website

Like most websites, we use “cookies” to help us make our site – and the way you use it – better. Cookies mean that a website will remember you. They’re small text files that sites transfer to your computer (or phone or tablet). They make interacting with a website faster and easier – for example by automatically filling your name and address in text fields.

In addition, the type of device you’re using to access our website or apps and the settings on that device may provide us with information about your device, including what type of device it is, what specific device you have, what operating system you’re using, what your device settings are, and why a crash has happened. Your device manufacturer or operating system provider will have more details about what information your device makes available to us.

We do not receive any contact details in this way, it is anonymous data, and we only use this to help improve our website for all those visiting and using it.


If you support us, for example make a donation, register to fundraise, sign up for an event or buy something from our shop, we will usually collect:

  • Your name
  • Your contact details
  • Your date of birth
  • Your bank or credit card details.

We will use your data to:

  • Provide you with the services, products or information you asked for
  • Administer your donation or support your fundraising, including processing gift aid
  • Keep a record of your support for Thrombosis UK

    What personal information do we collect?

    Only with your permission and when you complete a form to register / attend an event / or contact us, do we collect, store and use the following kinds of personal information:

    • your name;
    • your contact details (including postal address, telephone number, e-mail address and/or social media identity);
    • your date of birth;
    • your gender;
    • if you apply for research funding, information necessary to process your application, such as your employment and academic history;
    • information about events, activities and products which you indicate on our registration and contact form, that you would like to receive further information on;
    • information as to whether you are a taxpayer and happy to register for Gift Aid so that we can benefit further from your donation by claiming Gift Aid;
    • any other personal information you choose to provide to us.

    How do we use your information?

    We will use your personal information to:

    • provide you with the services, products or information you asked for;
    • administer your donation or support your fundraising, including processing Gift Aid;
    • keep a record of your relationship with us;
    • respond to or fulfil any requests, complaints or queries you make to us;
    • manage our events;
    • send you correspondence and communicate with you;
    • process applications for funding and for administration of our role in the projects we fund;monitor website use to monitor website traffic

    How we use your information to tell you about Thrombosis UK’s work and activities you have indicated that you would like to hear more about

    Direct Marketing

    With your consent, we will contact you to let you know about the progress we are making and to share ideas for fundraising and opportunities to donate or support our work – for instance by nominating us as your chosen charity when shopping in certain on-line stores.

    Our ‘consent to contact’ form has preference questions, so we are certain in what way and about what things are happy to be contacted.

    There will always be an ‘opt out’ option on all our e-communications.

    How do we safe-guard your information?

    We ensure our IT systems remain updated and protected. Our IT support continually monitors security on the systems we use.

    Only employees of Thrombosis UK have access to confidential data and can only access this using approved systems.

    We never sell or share personal details with third parties.

    How long do we keep your information?

    Thrombosis UK has specific criteria to determine how long we will retain your information for, which are determined by legal and operational considerations. For instance, if a donation or payment is made to the charity, we are required to keep some personal information for tax or financial and auditing purposes. We also need to keep a record of your interactions with us.

    However, data outside of these requirements will only be kept for a maximum of twelve months. Just before the twelve months is up, we will contact you to ask if you are happy for us to continue to hold your contact details and other information you may have shared with us, and if you confirm giving your permission, then we will keep this for a further twelve months. If you do not reply or reply ‘no’, then your information will be deleted from our systems.

    Sharing your information with other organisations:

    Thrombosis UK will never sell, loan or rent your information to any third party. However, we may need to disclose your information to third parties in connection with the other purposes set out in this policy. These third parties may include:

    • suppliers, such as Just Giving or Pay Pal who may process information on our behalf; but we would always inform you before this process commenced to confirm your permission

    Keeping your data up to date:

    We are committed to making sure you are in control of your data and you are able to opt out from being contacted by Thrombosis UK at any time.

    Annually we will contact you to seek your permission to continue to hold your contact details so that we can contact you from time to time about the work of the charity, news and updates on thrombosis, forth coming events.

    We really appreciate it if you let us know if your contact details change

    What are your rights?

    Under UK data protection law, you have rights over personal information that Thrombosis UK holds about you.

    Right to access your personal information

    You have a right to request access to the personal data that we hold about you. You also have the right to request a copy of the information we hold about you, and we will provide you with this unless legal exceptions apply.

    If you want to access your information, send a description of the information you want to see by post to:

    Thrombosis UK,
    PO Box 58,
    SA19 0AD

    Or email: [email protected]

    Right to have your inaccurate personal information corrected

    You have the right to have inaccurate or incomplete information we hold about you corrected. If you believe the information we hold about you is inaccurate or incomplete, please provide us with details and we will investigate and, where applicable, correct any inaccuracies.

    Right to erasure of your personal information

    You may ask us to delete some or all of your personal information and in certain cases, and subject to certain exceptions, you have the right for this to be done.

    Right to object to the use of your personal information

    If we are processing your personal information for direct marketing purposes, and you wish to opt out, we will stop processing your information for these purposes as quickly and as soon as is reasonably possible.

    If you want to exercise any of the above rights, please contact:

    Thrombosis UK,
    PO Box 58,
    SA19 0AD

    Or email: [email protected]

    Please note that exceptions apply to a number of these rights, and not all rights will be applicable in all circumstances.

    For more details we recommend you consult the guidance published by the UK’s Information Commissioner’s Office (ICO).

    How to contact us
    If you have any questions, comments or suggestions, please let us know by contacting Thrombosis UK:

    [email protected]
    Or by phone on 0300 772 9603