Knowing that you are not alone, can make such a difference. Understanding what others have experienced and things that have helped – or challenged, along the way.

If you would like to offer your support by recording and sharing your account you will be helping many, many other.

Simply write your account in an email or on a word document and email this to ideally sharing with one or more photos.

Karen journey to diagnosis of a PE

My PE was diagnosed a year ago in 2022. For several weeks I had a pain in my upper back and eventually saw a GP who thought it was a strained muscle but ordered a chest X-ray and some blood tests.

Sue’s recovery to enjoying a full life after a PE

About 15 years ago when I was 45 (as I am coming up to my 60th) I had been having a knife like pain under my right shoulder blade on the Monday at work , I had also lost my voice for the last couple of months .

Louise - I had a bilateral PE in 2013

I had a bilateral PE in 2013, but was initially sent home from A&E with antibiotics despite classic symptoms/risk factors and a strong family history of thrombosis because my d dimer was negative. I was 31 at the time and a keen runner.

My name is Kayleigh, I am 25 years old

My name is Kayleigh, I am 25 years old, 5 years ago this year in July, I was diagnosed with cerebral venous sinus thrombosis. I had been suffering from major headaches and feeling sick for weeks!

Charlotte Johnson, 19

In late September 2022, I woke up to a weird pain on my left side. I thought I’d pulled a muscle in my sleep but as the day went on the pain intensified. The next day was my first day of 2nd year (for context I’m a student nurse), I barely slept that night as I couldn’t lie flat from the pain and went to university extremely uncomfortable with every breath I took.

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