My PE was diagnosed a year ago in 2022. For several weeks I had a pain in my upper back and eventually saw a GP who thought it was a strained muscle but ordered a chest X-ray and some blood tests.
Share & Tell
Knowing that you are not alone, can make such a difference. Understanding what others have experienced and things that have helped – or challenged, along the way.
If you would like to offer your support by recording and sharing your account you will be helping many, many other.
Simply write your account in an email or on a word document and email this to jo@thrombosisuk.org ideally sharing with one or more photos.
About 15 years ago when I was 45 (as I am coming up to my 60th) I had been having a knife like pain under my right shoulder blade on the Monday at work , I had also lost my voice for the last couple of months .
The start of the Clot journey was very unexpected I was age 34 and was 32 weeks pregnant. I was struggling to breathe however I put it down to pregnancy and positioned high.
My husband and I are keen long distance walkers and in September 2020 decided to celebrate coming out of lockdown by walking Hadrians Wall path.
I am 42, female, was a long distance runner, cyclist and very active in dog sports prior to my diagnosis. I considered myself to be 100% fit and healthy.
I had a bilateral PE in 2013, but was initially sent home from A&E with antibiotics despite classic symptoms/risk factors and a strong family history of thrombosis because my d dimer was negative. I was 31 at the time and a keen runner.
My name is Kayleigh, I am 25 years old, 5 years ago this year in July, I was diagnosed with cerebral venous sinus thrombosis. I had been suffering from major headaches and feeling sick for weeks!
I would like to share my story so that others could be aware of what symptoms to look for.
In late September 2022, I woke up to a weird pain on my left side. I thought I’d pulled a muscle in my sleep but as the day went on the pain intensified. The next day was my first day of 2nd year (for context I’m a student nurse), I barely slept that night as I couldn’t lie flat from the pain and went to university extremely uncomfortable with every breath I took.
I was diagnosed at nine weeks pregnant in 2008. I'd had a flu type virus two weeks before and then spent a week hobbling around with what I thought was sciatica.
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