Vaccine induced Immune Thrombocytopenia and Thrombosis (VITT) and
Venous Thromboembolism (VTE) SUPPORT

Whether you have suffered vaccine induced immune thrombocytopenia and thrombosis (VITT) or a venous thromboembolism (VTE) the event can be sudden, unexpected, and potentially be life-threatening. As a result, harm caused by either may have a physical, life-changing impact or psychological impact – or both, and it is not unusual to experience emotional anxiety that is difficult to manage.

VITT causes blood clots to form in the blood vessels in different parts of the body including the brain, liver, gut, heart, legs, lungs and kidneys and is considered a medical emergency. If suspected, VITT needs urgent medical attention.

 

Published research has evidenced that survivors of a VTE or VITT event can experience significant psychological impact and may need psychological support.

Thrombosis UK is working to support individuals effected by these conditions, and has established a number of resources:

Facebook support group VTE

A closed Facebook peer to peer support group specifically for VTE patients (including DVT, PE, CVST and other blood clots formed in the deep veins) Visit Facebook page

Facebook support group VITT

A closed Facebook peer to peer support group specifically for VITT patients Visit Facebook page

Support Meetings

Small group online support meetings: email annya@thrombosisuk.org for information on forthcoming meetings.

A library of support literature written by clinical psychologists

Films and recorded support meetings

Watch Videos

Patient Support Lead

Contact Annya

An internet-based psychological support service led by a clinical psychologist to which patients may be referred by clinicians or self-refer

Established in February 2022, this service has limited places and we are unable to guarantee all referrals an appointment.

• An individual can self-refer or be referred by their doctor.
• To seek referral please complete and submit the online form.
• All applications will receive a reply, and where appropriate, sign posted to a support resource.
• Due to limited resources, an appointment with the clinical psychologist cannot be guaranteed.
• If offered an appointment with a clinical psychologist, an email with joining link will be sent to you.
• Appointments for the clinical psychology service are provided free of charge. A maximum of six one hour appointments can be offered where there is availability and the individual meets the referral criteria.
• If you are unable to make an agreed appointment, please notify the service within 24 hours of the meeting date. Missed appointments that have not been cancelled will not be automatically re-booked.

Referral Form

If you have been diagnosed with Vaccine-Induced Immune Thrombocytopenia and Thrombosis (VITT) or venous thromboembolism (VTE), this can also be known as deep vein thrombosis, DVT, pulmonary embolism (PE), Cerebral venous sinus thrombosis (CVST) or a thrombosis in a deep vein of a limb or other part of the body, and would like to learn more about the support available from Thrombosis UK, please complete this online form and we will make contact with you via your email address.

Form

Firstname: *

Surname: *

Email *

Telephone Number:

Please confirm if you are happy to be contacted by telephone
(this will only be about your enquiry to the REGAIN service):

Yes

No

Date of Diagnosis: *

Medical centre where diagnosed: *

Since your diagnosis of VITT or a VTE (DVT/PE/CVST), have you been offered local psychological counselling support?

Are you currently receiving support from local services that includes access to counselling with a psychologist or similar support?

Have you declined or opted to stop local counselling support?
(This will not prevent you from accessing the REGAIN support service, we just need to understand individual needs and benefits)

Comments:

Questionnaire

Over the past two weeks have you...

Been able to concentrate on whatever you are doing:

More so than usual

Same as usual

Less than usual

Much less than usual

Lost sleep over worry:

Not at all

No more than usual

Rather more than usual

Much more than usual

Felt you are playing a useful part in things:

More so than usual

Same as usual

Less than usual

Much less than usual

Felt capable of making decisions about things:

More so than usual

Same as usual

Less than usual

Much less than usual

Felt constantly under strain:

Not at all

No more than usual

Rather more than usual

Much more than usual

Felt you couldn't overcome your difficulties:

Not at all

No more than usual

Rather more than usual

Much more than usual

Been able to enjoy your normal day to day activities:

More so than usual

Same as usual

Less than usual

Much less than usual

Been able to face up to your problems:

More so than usual

Same as usual

Less than usual

Much less than usual

Been feeling unhappy and depressed:

Not at all

No more than usual

Rather more than usual

Much more than usual

Been losing confidence in yourself:

Not at all

No more than usual

Rather more than usual

Much more than usual

Been thinking of yourself as a worthless person:

Not at all

No more than usual

Rather more than usual

Much more than usual

Been feeling reasonably happy all things considered:

More so than usual

Same as usual

Less than usual

Much less than usual

Consent

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