Research is essential to improving the prevention, diagnosis, treatment, and support available for people affected by blood clots (venous thromboembolism – VTE). At Thrombosis UK, we believe that the voices and lived experiences of patients, families, and carers must shape every stage of research.
Whether you are newly diagnosed, living with long-term effects, supporting someone with a clot, or simply passionate about improving care, your insight can make a real difference.
Patients and the public help researchers to:
Your involvement helps ensure research leads to genuine improvements in care and quality of life.
There are many ways to contribute, and you can choose what feels right for you:
Help researchers shape study design, patient materials, questionnaires, and priorities.
Give feedback on leaflets, study summaries, or consent forms so they are clear and easy to understand.
Your lived experience can highlight gaps in care and help researchers focus on what matters most.
You may be invited to join a clinical trial, survey, interview, or long-term follow‑up study. Participation is always voluntary.
Share study opportunities with your community or networks to support wider participation.
Anyone with experience of:
You do not need any medical or research knowledge — lived experience is what matters most.
Taking part in research involvement activities is flexible. You may:
You can choose how much or how little you want to be involved. Some activities are one-off; others may continue over several months.
Travel costs or involvement payments may be offered, depending on the project.
We regularly share opportunities for patients, families, and carers to get involved in research. These may include:
There are no current opportunities. Once we have one, it will be listed here or shared via our newsletter and social channels.
July 2025:
We invite patients living with severe thrombophilia to participate in an important research opportunity.
We also invite healthcare professionals and partner organisation to share this survey.
This research initiative aims to gather critical insights directly from patients to inform global efforts in improving diagnosis, treatment protocols and overall patient outcomes.
The survey is for patients living with severe thrombophilia, including:
Developed by Thrombosis UK along with World Thrombosis Day and with international collaborators and medical experts, the survey is designed to capture the real experiences of people living with severe thrombophilia and to help shape the future of treatment.
This research has the potential to influence medical guidelines, treatment approaches and support services worldwide.
Why patient voices are important
By sharing your perspective, you can help:
The survey will take no more than 5 minutes and can be accessed by clicking the link below. For healthcare professionals, please download the flyer below and share it with your patients.
Thank you for considering this opportunity. Together, we can work toward better care and outcomes for everyone affected by thrombophilia.
#1 Opportunity!
Help improve postnatal care for women. We’re developing a clinical trial to prevent blood clots after childbirth—and we need your insight.
If you are a woman aged 18–55 who has experienced a DVT or PE, your feedback matters.
Interested in taking part? Click the link to take part in the 5 minute survey.
#2 Opportunity!
The Thrombo‑Stop trial is investigating whether the anticoagulant apixaban can safely reduce blood clots in people with lung cancer receiving systemic anticancer treatment (SACT), such as chemotherapy, immunotherapy or targeted therapies. Lung cancer carries a high risk of deep vein thrombosis (DVT) and pulmonary embolism (PE), which can seriously impact quality of life. Participants will be randomly assigned to receive either apixaban or a placebo for six months. Recruitment will run from 2026–2029 across 40–50 UK centres.
Interested in taking part? Speak to your lung cancer team or treating clinician to see if you may be eligible.
#3 Opportunity!
A team from Imperial College London are seeking a patient representative to join the ACUTE project which is currently preparing to apply for grant funding. Read the plain language summary.
The team is seeking a patient/public member to be a co-applicant for this project at 2% FTE. Involvement would include reviewing study protocol, patient-facing materials and attendance at study meetings depending on availability.
If you would like to participate or have further questions, please contact Dr Karen Soh at [email protected].
#4 Opportunity!
Add your opinion
The ACUTE project team invites interested individuals to participate in a survey to share their thoughts on the study.
There are no current opportunities. Once we have one, it will be listed here or shared via our newsletter and social channels.
We only share opportunities that meet ethical and good practice standards. Any personal details you provide will be treated securely and confidentially. You can withdraw your interest at any time.
If you would like to be notified about opportunities to contribute to research:
By sharing your experience, you are helping shape better research, better treatment, and better outcomes for everyone affected by blood clots. Thank you for considering being part of this important work.
Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.
When completing your application form, you should use lay language and answer each question in a concise manner.
Please keep to any word limits given.
All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.
Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]
The closing date for applications is 1st February 2025
We are unable to consider late applications.
Thrombosis UK has a strict data protection policy that complies with UK data protection law.
Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.
We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application. If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.
Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]
Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.
When completing your application form, you should use lay language and answer each question in a concise manner.
Please keep to any word limits given.
All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.
Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]
The closing date for applications is 1st February 2025
We are unable to consider late applications.
Thrombosis UK has a strict data protection policy that complies with UK data protection law.
Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.
We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application. If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.
Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]
Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.
When completing your application form, you should use lay language and answer each question in a concise manner.
Please keep to any word limits given.
All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.
Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]
The closing date for applications is 1st February 2025
We are unable to consider late applications.
Thrombosis UK has a strict data protection policy that complies with UK data protection law.
Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.
We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application. If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.
Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]
Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.
When completing your application form, you should use lay language and answer each question in a concise manner.
Please keep to any word limits given.
All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.
Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]
The closing date for applications is 1st February 2025
We are unable to consider late applications.
Thrombosis UK has a strict data protection policy that complies with UK data protection law.
Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.
We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application. If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.
Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]
Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.
When completing your application form, you should use lay language and answer each question in a concise manner.
Please keep to any word limits given.
All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.
Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]
The closing date for applications is 1st February 2025
We are unable to consider late applications.
Thrombosis UK has a strict data protection policy that complies with UK data protection law.
Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.
We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application. If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.
Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]
Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.
When completing your application form, you should use lay language and answer each question in a concise manner.
Please keep to any word limits given.
All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.
Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]
The closing date for applications is 1st February 2025
We are unable to consider late applications.
Thrombosis UK has a strict data protection policy that complies with UK data protection law.
Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.
We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application. If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.
Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]
