Patient Information

Coping With Worry After A Clot

We’ve created a space to address anxiety and questions after a VTE diagnosis.

Self Advocacy

Self advocacy empowers people with Venous Thromboembolism (VTE) to take an active role in their care.

Patient Support Meetings

Join a supportive community to share experiences and receive encouragement.

Let's Talk Clots App

The app offers info on blood clots, risk reduction, symptoms, diagnosis, treatments, and recovery support.

Shared Accounts

Shared experiences from those affected offer support and raise awareness.

Educational Events

Join a compassionate community to connect, share experiences, and receive support.

Get Involved

See how you can get involved in our community through fundraising, volunteering, and much more.

Self-Advocacy

Self-advocacy empowers people with Venous Thromboembolism (VTE) to take an active role in their care, ask informed questions, and ensure their symptoms and concerns are fully recognised.

When Patients Persist: The Power of
Self-Advocacy in Diagnosis

Hear from Peter Queen, Patient Advocate who will share his own lived experience of navigating care followed by Q&A with Professor Beverley Hunt and GP Dr Matthew Fay.

Questions to ask your Healthcare Professional

This practical leaflet is designed to help patients feel more confident and informed when speaking with their healthcare team about suspected or confirmed blood clots. It provides clear, structured questions covering symptoms, diagnosis, treatment, and ongoing care—supporting better understanding, shared decision-making, and safer management of Venous Thromboembolism (VTE).

Getting help if you are unhappy with your medical care

If you are worried about your care, feel you have not been listened to, or want help to speak up, you have the right to ask questions, raise concerns and make a complaint. This page explains practical steps you can take and where to get support.

Self-advocacy means speaking up about your needs, concerns and preferences so that you can be actively involved in decisions about your care. It can help you understand your diagnosis and treatment options, make sure important information is not missed, and feel more confident asking for support when something does not seem right. You do not have to manage this alone — you can ask a trusted person, PALS (see below), an advocate or another support service to help you prepare questions, attend appointments or raise concerns.

Remember – Self-advocacy is a form of self-care!

If you need urgent medical help

If you think your health is at immediate risk, do not wait to make a complaint. Contact your clinical team, call NHS 111, or call 999 in an emergency.

Ways to speak up about your care

  • Ask your doctor, nurse, midwife or another member of staff to explain what is happening and what your options are.
  • Write down your questions before an appointment and take notes during or afterwards.
  • Ask if you can bring someone with you to appointments for support.
  • Ask who is responsible for coordinating your care, especially if more than one team is involved.
  • If something has gone wrong, ask what happened, what will be done next and how the same issue will be prevented in future.

Getting a second opinion

You can ask for a second opinion if you are unsure about a diagnosis, treatment plan or decision about your care. This does not mean your care will automatically be transferred or that another opinion will be offered in every situation, but your doctor should explain your options and how to request one. It can help to say clearly what you are worried about and what you would like another clinician to review.

Where to get further support

The Patient Advice and Liaison Service (PALS) offers free and confidential advice, support and information on health-related matters. PALS provides a point of contact for patients, families and carers, and is usually available through local hospitals and NHS trusts in England.

 

PALS can help answer questions, explain NHS processes, support you to resolve concerns informally, and tell you how to make a complaint if the issue cannot be resolved quickly.

 

To contact PALS, ask the hospital, NHS trust or service for its PALS details, search for your nearest PALS service on the NHS website, or ask NHS 111 for details of your local PALS team.

 

England – Find patient advice and liaison services (PALS) – NHS

 

WalesNHS Wales complaints and concerns: Putting Things Right | GOV.WALES

 

Scotland PASS | Patient Advice and Support Service Scotland

 

Northern Ireland – Ask about the complaints procedure locally.

If you need help to make a complaint

If you are making, or thinking about making, a complaint about NHS care in England, you may be able to get free help from an NHS complaints advocate. An advocate can help you understand the complaints process, write a complaint letter, prepare for meetings and attend meetings with you. An NHS complaints advocate cannot make the complaint for you, investigate your complaint, or give medical or legal advice, but they can support you at any stage of the complaints process.

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award deep vein thrombosis (DVT) pathway award for leading to improved timely diagnosis of thrombosis
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for an excellent Quality Improvement programme that advanced practice in thrombosis prevention or management.
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for outstanding patient resource, sharing information. about VTE prevention for patients and carers
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for Enhancing Patient Experience
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for advancing awareness and information sharing of cancer acquired thrombosis (CAT)
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for work in VTE Prevention
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

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