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Patient Information

Know Your Clot Risk
Hospital risk factors for blood clots
Cancer related risk factors for blood clots
Early Pregnancy Blood Clot Risk Assessment Tool
Pregnancy risk factors for blood clots
Hormone therapies risk factors for blood clots

Understanding Blood Clots
Booklets & Fact Sheets
Patient Information Videos

Coping With Worry After A Clot

We’ve created a space to address anxiety and questions after a VTE diagnosis.

Self Advocacy

Self advocacy empowers people with Venous Thromboembolism (VTE) to take an active role in their care.

Patient Support Meetings

Join a supportive community to share experiences and receive encouragement.

Let's Talk Clots App

The app offers info on blood clots, risk reduction, symptoms, diagnosis, treatments, and recovery support.

Shared Accounts

Shared experiences from those affected offer support and raise awareness.

Educational Events

Join a compassionate community to connect, share experiences, and receive support.

Get Involved

See how you can get involved in our community through fundraising, volunteering, and much more.

Pregnancy Campaign

Pregnancy Campaign

Know the Signs: Blood Clot Risk in Pregnancy and Beyond
For health Professionals

Why VTE Matters

Find out about why VTE matters

Accredited Training & Resources
VTE E-Learning Platform
National Thrombosis Week Conference 2026
Educational Events
VTE Risk Assessment Tools
Patient Resources
Training and Learning Resources

VTE Guidelines & Publications

Guidelines and publications to educate on VTE

Research Opportunity & Updates
VTE Research Opportunities
Research Grants
Research Films

Network Support

Promoting knowledge-sharing, professional development, and collaboration among UK medical experts.

Early Pregnancy Blood Clot Risk-Assessment Tool

In consultation with NHS England, this questionnaire addresses VTE, the leading cause of pregnancy death.
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Your support helps us continue our vital work
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Take part in our research
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Calendar of Events

Fundraising Events

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Educational Events

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Educational Events for HCPs

View our Educational Events for Healthcare Professionals

Patient Support Meetings

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News

News

Read more about our latest news
About Thrombosis UK

Mission

Learn about why we do what we do

History

Find out more about our history

Our team

Learn about our team

Annual reports

See our annual reports

What Your Support Helps Us To Achieve

See what you have helped us achieve over the years and what’s to come!

Partnerships

Find out more about your partnerships

National Thrombosis Week

National Thrombosis Week is Thrombosis UK’s annual awareness week, when we bring together patients and health care professionals.

Thrombosis UK VTE Awards

The VTE Awards celebrate pioneers excelling in VTE prevention, management, and patient care.

World Thrombosis Day

TBC

Get Involved in Research

Research is essential to improving the prevention, diagnosis, treatment, and support available for people affected by blood clots (venous thromboembolism – VTE). At Thrombosis UK, we believe that the voices and lived experiences of patients, families, and carers must shape every stage of research.

 

Whether you are newly diagnosed, living with long-term effects, supporting someone with a clot, or simply passionate about improving care, your insight can make a real difference.

Register Your Interest

Why Your Involvement Matters

Patients and the public help researchers to:

  • Ask the right questions
  • Design studies that reflect real-world experiences
  • Improve communication and patient information
  • Ensure outcomes measured in studies are those that matter to patients
  • Make research more accessible, inclusive, and relevant

Your involvement helps ensure research leads to genuine improvements in care and quality of life.

Ways You Can Get Involved

There are many ways to contribute, and you can choose what feels right for you:

1. Join a Research Advisory Group

Help researchers shape study design, patient materials, questionnaires, and priorities.

2. Review Patient Information

Give feedback on leaflets, study summaries, or consent forms so they are clear and easy to understand.

3. Share Your Experiences

Your lived experience can highlight gaps in care and help researchers focus on what matters most.

4. Participate in a Study

You may be invited to join a clinical trial, survey, interview, or long-term follow‑up study. Participation is always voluntary.

5. Help Raise Awareness

Share study opportunities with your community or networks to support wider participation.

Who Can Take Part?

Anyone with experience of:

  • Deep vein thrombosis (DVT)
  • Pulmonary embolism (PE)
  • Long-term complications such as PTS or CTEPH
  • Blood clotting disorders
  • Supporting or caring for a loved one affected by VTE

You do not need any medical or research knowledge — lived experience is what matters most.

What to Expect

Taking part in research involvement activities is flexible. You may:

  • Attend online or in-person meetings
  • Read and comment on documents at home
  • Join focus groups or interviews
  • Receive updates on ongoing studies

You can choose how much or how little you want to be involved. Some activities are one-off; others may continue over several months.

Travel costs or involvement payments may be offered, depending on the project.

Current Opportunities

We regularly share opportunities for patients, families, and carers to get involved in research. These may include:

  • Advisory group roles

#1 Opportunity!

Thrombectomy in PE

We are looking for a PPI representative to join the trial management team for a large UK based registry collecting observational data regarding intermediate-high risk Pulmonary Embolism. There is a focus particularly on those undergoing mechanical thrombectomy, but any patient or member of the pubic with lived experience of PE would be suitable. The role comprises of attending meetings and advising regarding patients viewpoint to the study management group. Meetings held online monthly.

Email: [email protected]

See All Details
Click here
  • Study participant recruitment

There are no current opportunities. Once we have one, it will be listed here or shared via our newsletter and social channels.

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  • Surveys or interviews

Global Survey

Help shape the future of thrombophilia care – New patient survey from Thrombosis UK

July 2025:

We invite patients living with severe thrombophilia to participate in an important research opportunity.

We also invite healthcare professionals and partner organisation to share this survey.

This research initiative aims to gather critical insights directly from patients to inform global efforts in improving diagnosis, treatment protocols and overall patient outcomes.

The survey is for patients living with severe thrombophilia, including:

  • Antithrombin Deficiency
    Protein C Deficiency
  • Protein S Deficiency
  • Homozygous Factor V Leiden
  • Combinations such as Factor V Leiden and Prothrombin 20210.

Developed by Thrombosis UK along with World Thrombosis Day and with international collaborators and medical experts, the survey is designed to capture the real experiences of people living with severe thrombophilia and to help shape the future of treatment.

This research has the potential to influence medical guidelines, treatment approaches and support services worldwide.

 

Why patient voices are important

By sharing your perspective, you can help:

  • Improve care for current and future patients
  • Raise awareness about the challenges faced by those with thrombophilia
  • Shape the future of treatment for people living with these conditions around the world
  • Inform healthcare providers about what matters most to patients
  • Advance research that could lead to better outcomes

The survey will take no more than 5 minutes and can be accessed by clicking the link below. For healthcare professionals, please download the flyer below and share it with your patients.

Thank you for considering this opportunity. Together, we can work toward better care and outcomes for everyone affected by thrombophilia.

Take the survey

See All Details

#1 Opportunity!

Help improve postnatal care for women. We’re developing a clinical trial to prevent blood clots after childbirth—and we need your insight.

If you are a woman aged 18–55 who has experienced a DVT or PE, your feedback matters.

👉 Interested in taking part? Click the link to take part in the 5 minute survey.

See All Details
Click here

#2 Opportunity!

The Thrombo‑Stop trial is investigating whether the anticoagulant apixaban can safely reduce blood clots in people with lung cancer receiving systemic anticancer treatment (SACT), such as chemotherapy, immunotherapy or targeted therapies. Lung cancer carries a high risk of deep vein thrombosis (DVT) and pulmonary embolism (PE), which can seriously impact quality of life. Participants will be randomly assigned to receive either apixaban or a placebo for six months. Recruitment will run from 2026–2029 across 40–50 UK centres.

👉 Interested in taking part? Speak to your lung cancer team or treating clinician to see if you may be eligible.

See All Details
More information here

#3 Opportunity!

A team from Imperial College London are seeking a patient representative to join the ACUTE project which is currently preparing to apply for grant funding. Read the plain language summary.

The team is seeking a patient/public member to be a co-applicant for this project at 2% FTE. Involvement would include reviewing study protocol, patient-facing materials and attendance at study meetings depending on availability. 

If you would like to participate or have further questions, please contact Dr Karen Soh at [email protected].

See All Details

#4 Opportunity!

Add your opinion

The ACUTE project team invites interested individuals to participate in a survey to share their thoughts on the study. 

See All Details
Complete the short survey
  • Focus groups

There are no current opportunities. Once we have one, it will be listed here or shared via our newsletter and social channels.

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  • Document review opportunities

There are no current opportunities. Once we have one, it will be listed here or shared via our newsletter and social channels.

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Safeguarding Your Information

We only share opportunities that meet ethical and good practice standards. Any personal details you provide will be treated securely and confidentially. You can withdraw your interest at any time.

Register Your Interest

If you would like to be notified about opportunities to contribute to research:

Email: [email protected]

Together, We Can Improve the Future of VTE Care

By sharing your experience, you are helping shape better research, better treatment, and better outcomes for everyone affected by blood clots. Thank you for considering being part of this important work.

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award deep vein thrombosis (DVT) pathway award for leading to improved timely diagnosis of thrombosis
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for an excellent Quality Improvement programme that advanced practice in thrombosis prevention or management.
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for outstanding patient resource, sharing information. about VTE prevention for patients and carers
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for Enhancing Patient Experience
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for advancing awareness and information sharing of cancer acquired thrombosis (CAT)
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for work in VTE Prevention
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

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