Patient Information

Coping With Worry After A Clot

We’ve created a space to address anxiety and questions after a VTE diagnosis.

Self Advocacy

Self advocacy empowers people with Venous Thromboembolism (VTE) to take an active role in their care.

Patient Support Meetings

Join a supportive community to share experiences and receive encouragement.

Let's Talk Clots App

The app offers info on blood clots, risk reduction, symptoms, diagnosis, treatments, and recovery support.

Shared Accounts

Shared experiences from those affected offer support and raise awareness.

Educational Events

Join a compassionate community to connect, share experiences, and receive support.

Get Involved

See how you can get involved in our community through fundraising, volunteering, and much more.

Pregnancy & Postpartum VTE Awareness Campaign

Improving Awareness and Prevention of Blood Clots in Pregnancy and Puerperium (six weeks after birth)

Venous thromboembolism (VTE), which includes deep vein thrombosis (DVT) and pulmonary embolism (PE), is the leading cause of maternal death in the UK during pregnancy and puerperium, according to the 2025 MBRRACE report.

Our campaign aims to raise awareness of VTE risk during pregnancy and the postpartum period among the public and health care professionals, promote early VTE risk assessment in pregnancy, and preventative care. We aim to bring together parliamentarians, healthcare professionals, patient organisations and maternity services, the campaign seeks to ensure that every one and especially pregnant woman receives timely information about blood clot risks, symptoms and prevention strategies.

This campaign promotes the use of the Thrombosis UK Early Pregnancy Blood Clot Risk Assessment Questionnaire, which is an evidence based VTE risk assessment tool designed to be used by women themselves in early pregnancy and also healthcare professions, so that women at high risk of VTE in early pregnancy are identified and receive prevention early, before they even register with maternity care. It was made by an expert and patient team working with NHS England, using modern evidance base and the 2025 MBRRACE report data showing a high rate of VTE deaths on early pregnancy. Early recognition, appropriate thromboprophylaxis and prompt treatment can save lives and reduce avoidable maternal harm.

Campaign objectives:

  • Increase public and professional awareness of VTE in pregnancy and puerperium.
  • Promote early and use of the Early Pregnancy Risk Assessment Tool.
  • Improve education on the risks, signs and symptoms of DVT and PE.
  • Strengthening patients voice and support.
  • Driving policy and system attention (NICE and RCOG guidelines)

Early Pregnancy BLOOD CLOt Risk Assessment Questionnaire

The Early Pregnancy Blood Clot Risk Assessment Questionnaire is a  questionnaire designed to identify women who may be at increased risk of developing a blood clot (venous thromboembolism, or VTE) in early pregnancy, before their first maternity booking appointment. It helps women and healthcare professionals recognise important risk factors that may require urgent review and preventative treatment.

Alicia Kearns MP Speaks Out on Maternal Blood Clot Risks Following Her Own Near-Fatal Experience

Alicia Kearns MP said in a debate on healthcare in pregnancy following the Amos and Ockendon reports on Tuesday 30th June.

 

“This week last year, I had multiple pulmonary emboli only a few weeks after giving birth. I am very grateful to Dr Laura Stephens, who saved my life and then was punished for ordering the test which found the emboli. Blood clots are the No. 1 cause of death in pregnant and post-partum women, and yet there is not a word about their risk in any pregnancy pack given out in this country. The national action plan will fail if it does not tackle blood clots as the No. 1 cause of maternal deaths. Will the Health Secretary kindly meet me and work with me, so that together we can save lives?”

Questions Remain Over Blood Clot Prevention in Pregnancy Following Disappointing Response to Alicia Kearns MP

At Thrombosis UK, we were delighted to see Alicia Kearns MP raise the vital issue of blood clot prevention and care during pregnancy through a series of detailed written parliamentary questions. Ensuring that women receive appropriate risk assessment, timely diagnosis, and effective prevention measures is essential, given that blood clots remain a leading cause of maternal death.


As an organisation dedicated to improving awareness and patient outcomes, we welcomed the opportunity for greater parliamentary scrutiny of this important issue. However, we were disappointed by the responses provided, which we feel did not fully address the challenges faced by women at risk of thrombosis during pregnancy and the postnatal period.


We remain committed to working with policymakers, healthcare professionals, and patients to improve awareness, prevention, and standards of care. We would welcome more detailed responses from Yvette Cooper MP and her new team. 

You can read the parliamentary questions and responses in full here: https://members.parliament.uk/member/4805/writtenquestions

MBRRACE-UK Saving Lives, Improving Mothers' Care annual report

The 2025 MBRRACE-UK Saving Lives, Improving Mothers’ Care report highlights that thrombosis and thromboembolism (VTE) remain the leading direct cause of maternal death in the UK during pregnancy and up to six weeks postpartum. Given the significant burden of preventable morbidity and mortality associated with VTE, early identification and management of women at increased risk is essential.

Please click here to access the MBRRACE-UK Report

Have you experienced a blood clot during pregnancy or after giving birth?

We are looking for individuals who would be willing to share their experience of a blood clot during pregnancy or the postpartum period.

 

Your story could help raise awareness and support others by being featured on our website or as part of a filmed patient story.

 

If you would be interested in sharing your experience, please contact us at [email protected]

 

Thank you for helping us make a difference.

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award deep vein thrombosis (DVT) pathway award for leading to improved timely diagnosis of thrombosis
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for an excellent Quality Improvement programme that advanced practice in thrombosis prevention or management.
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for outstanding patient resource, sharing information. about VTE prevention for patients and carers
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for Enhancing Patient Experience
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for advancing awareness and information sharing of cancer acquired thrombosis (CAT)
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

Thrombosis UK VTE Awards
Application form

Applications are accepted on the basis that Thrombosis UK can share the content with external judges who will assist us with assessments. Service models, resources and working processes of successful Thrombosis UK VTE Award winners will be uploaded to the Thrombosis UK website and shared via publications, social media, and other opportunities.

When completing your application form, you should use lay language and answer each question in a concise manner. 

Please keep to any word limits given.

All sections need to be completed, if any section is removed, omitted or incomplete, we cannot process the application.

Applications need to be submitted via email to: [email protected] You will receive a notification of receipt within 48 hours of submission. If you do not receive a notification, please email [email protected]

The closing date for applications is 1st February 2025

We are unable to consider late applications.

Category
Thrombosis UK Award for work in VTE Prevention
Please note there is a separate application form for each category.
DATA PROTECTION

Thrombosis UK has a strict data protection policy that complies with UK data protection law.

Your name and contact details may be stored for up to 12 months in order for correspondence relating to your application be appropriately processed.

 

We wish to make you aware that your name and contact details, as included on your completed application form, will be viewed by the Thrombosis UK appointed Judging Panel solely for the purpose of reviewing and assessing your completed application.  If your nomination is short listed, a representative from Thrombosis UK will then seek your permission to include your name on the summary paragraph included in the awards brochure and on the Thrombosis UK website.

Thrombosis UK takes security and confidentiality very seriously. Your name and contact details will never be passed or shared with any third party or an unauthorised individual. If you have any queries, please contact: [email protected]

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